News from ENDIA
We’ll do our best to keep you updated with the latest developments about the Study here.
You can access all our newsletters sent to families and stakeholders on this page. If you’re not already receiving our news and you’d like to subscribe to “The ENDIAN” please click here.
Check out our Facebook page which is updated every couple of days. Each like or share helps spread the word and raises awareness of this important research into the causes of type 1 diabetes.
We are also on Instagram. If you’d like to include us in one of your own posts, we are @endiastudy or tag us at #endiastudy.
The ENDIA Study can also be found “tweeting”. If you’d like to follow us, you can find us with the handle @BetaCellCRE.
If you have any suggestions of news you’d like to read about here, or in our newsletters, please email us at firstname.lastname@example.org. We’d love to hear from you.
For other updates, see below!
The ENDIAN - Study Newsletter
Meet some of the participantsView all
Introducing ENDIAN 1400!
Introducing our 1400th participant in the making! This little bubba-to-be also has a big brother, Luke, enrolled in ENDIA because their mum, Nadia, lives with type 1 diabetes. We were very lucky to catch up with Nadia recently to find out more about her experiences with type 1 diabetes and participation in the ENDIA Study.
Zooming with the Papettas Family about ENDIA & CGM
Today we were delighted to zoom with Andrew, Emily and Adam Papettas. The Papettas Family have recently completed participation in our new CGM Study. Adam wore a CGM for a period of two weeks to help us monitor his blood sugar levels over this time, as well as other children participating in ENDIA.
Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.
Heidi, Jo and Imogen
Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.
The Parker Family
Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!
The Viskovitch Family
Meg Viskovitch recently shared with us why she and Greg said yes to ENDIA and what their experiences have been during their years of involvement in the study.
Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for five years now!
Meet the Willoughby Family
Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…
My life with type one diabetes has definitely been a rollercoaster with no two days the same. I have always been super sensitive to changes in insulin. According to my endo, I was on baby doses until I got my first insulin pump; the pot of gold at the end of a rainbow for my control. Granted, I do still have days where unideal things happen, but the most important thing to remember is that we are all human, not textbooks. Which is why I have always tried to live by the mantra that although I have diabetes, it does not have me; meaning that I will never let it stop me from living life to the fullest or achieving the goals and dreams that I want, including becoming a mum.
Damien McLeod on Being a Father of a Child with Type 1 Diabetes
ENDIA Dad, Damien McLeod, writes about being a father of a child living with type 1 diabetes.
Mortensen Family: It's about more than type 1 diabetes
The ENDIA Team recently received a message from ENDIA mum, Cynthia. She has twin girls in the study, Alice and Mia. Cynthia wanted to thank ENDIA for the early detection of Alice’s coeliac disease well before she got sick. Given she is a mother of four young children, we were extremely lucky to find Cynthia available for a chat during a “quiet moment” to discuss her experiences with autoimmunity and participation in type 1 diabetes research with all of her children. “ENDIA is the best decision we’ve ever made for our kids.” Read more here…