News from ENDIA
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Meet some of the participantsView all
Heidi, Jo and Imogen
Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.
It's about more than type 1 diabetes
The ENDIA Team recently received a message from ENDIA mum, Cynthia. She has twin girls in the study, Alice and Mia. Cynthia wanted to thank ENDIA for the early detection of Alice’s coeliac disease well before she got sick. Given she is a mother of four young children, we were extremely lucky to find Cynthia available for a chat during a “quiet moment” to discuss her experiences with autoimmunity and participation in type 1 diabetes research with all of her children. “ENDIA is the best decision we’ve ever made for our kids.” Read more here…
Meet the Willoughby Family
Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…
Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for five years now!
The Parker Family
Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!
Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.