News from ENDIA

We’ll do our best to keep you updated with the latest developments here.

Check out our Facebook page which is updated every couple of days. Each like or share helps spread the word.

If you have any suggestions about news you’d like to read about here, email us at endia@adelaide.edu.au.

Latest News

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Sep 2017
Anthony Albanese, Labor MP, met with two ENDIA families (the Jeffresons and the Russells, pictured on the right) and JDRF advocate,…
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Aug 2017
ENDIA seeks to enrol 1400 babies who have a first degree relative with T1D. The aim is to follow them…
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Jul 2017
Member for Ballarat and Shadow Health Minister, Catherine King, met with participating families and health professional advocates at Ballarat Base…
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Jul 2017
The wonderful Willoughby Family from Adelaide, SA, stepped up to promote type 1 diabetes and the ENDIA Study for Diabetes…
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Jun 2017
ENDIA Investigator, Professor Peter Colman, was recognised by a Member of the Order (AM) for his significant service to medicine in…
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Meet some of the participants

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Meet the Willoughby Family

Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…

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Stanton Family

Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.

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The Parker Family

Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!

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Heidi, Jo and Imogen

Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.

 

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Cadence

Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for four years now!

 

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What Is Involved?

ENDIA is a study following babies from the pregnancy into early childhood to find out what causes type 1 diabetes. There are no interventions; participation is low risk.

Regional Participation Program

The Regional Program was introduced to give people living in more rural and remote areas the opportunity to contribute to this important research from the comfort of their own home.