News from ENDIA

We’ll do our best to keep you updated with the latest developments about the Study here.

You can access all our newsletters sent to families and stakeholders on this page. If you’re not already receiving our news and you’d like to subscribe to “The ENDIAN” please email endia@adelaide.edu.au

Check out our Facebook page which is updated every couple of days. Each like or share helps spread the word and raises awareness of this important research into the causes of type 1 diabetes.

We are also on Instagram. If you’d like to include us in one of your own posts, we are @endiastudy or tag us at #endiastudy.

The ENDIA Study can also be found “tweeting”. If you’d like to follow us, you can find us with the handle @BetaCellCRE.

If you have any suggestions of news you’d like to read about here, or in our newsletters, please email us at endia@adelaide.edu.au. We’d love to hear from you.

For other updates, see below!

Latest News

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Dec 2023
JDRF Australia recognises the contribution that researchers make to progress improvements in the lives of those living with type 1…
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May 2023
We are pleased to share this ENDIA publication with you all. This describes the method we are using to analyse…
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Apr 2023
We're so excited that two papers have been published this year by the ENDIA Team within weeks of each other!…
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Mar 2023
To mark International Day of Women and Girls in Science, funders of the ENDIA Study, JDRF Australia, took time out…
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Feb 2023
Happy birthday to us! On this day, 15th February, in 2013 we recruited our very first participant at the Women's…
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Jan 2023
Lead ENDIA Study Investigators, Professors Jenny Couper and Simon Barry (and colleague Toby Coates), explain what their research is and…
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Oct 2022
The ENDIA Team is proud to share that our Lead Investigator, Professor Jennifer (Jenny) Couper, has been made a Fellow…
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Jun 2022
Why Does ENDIA Collect Deciduous Baby Teeth? The ENDIA Team would like to collect one of each participating child’s deciduous…
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Apr 2022
We have some exciting and innovative young researchers rising up within our ENDIA Study team. ENDIA is also very lucky…
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Feb 2022
Our latest ENDIA publication looked at the mental health of mums involved in the study during pregnancy and early after…
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Dec 2021
Congratulations to one of our mid-career researchers, Dr Rebecca Thomson! Rebecca receives her award from Interim RRI Director, Ray Rogers…
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Aug 2021
Over the years, we have recorded presentations made by our study team with updates, study information and the latest research…
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Aug 2021
"Type 1 diabetes in pregnancy is associated with distinct changes in the composition and function of the gut microbiome." The…
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Jul 2021
We're incredibly excited to share with you all that these three rising stars in the ENDIA Study team have each been awarded…
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Jun 2021
In February 2021, ENDIA held its first ever virtual meeting via Zoom. We recorded a number of the presentations to…
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Jun 2021
Today we were delighted to "zoom" with Andrew, Emily and Adam Papettas. The Papettas Family have recently completed participation in…
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Dec 2020
In keeping with the theme of COVID-19, the ENDIA Team has made the decision to go virtual for our 2021…
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Nov 2020
ENDIA is a study looking into the causes of type 1 diabetes. Participation involves, among other samples, the collection of…
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Nov 2020
We'd like to introduce our ENDIA Families and Friends to Dr. Jenny. Dr. Jenny has some information which may help…
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Jul 2020
ENDIA is so happy to announce that the final baby to be born into the study arrived safely in Melbourne.…
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Jul 2020
How has COVID-19 impacted on The ENDIA Study? Firstly, ENDIA is definitely continuing! We want to say a big thank…
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Jun 2020
The last Perth-based participant was born recently at the Perth Children's Hospital (PCH). Baby Angus arrived late June 2020 and…
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Jun 2020
There are two parts of the pancreas. One group of cells makes insulin which is affected in type 1 diabetes.…
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May 2020
Did you know that you can receive the ENDIA Study newsletters and updates directly to your inbox? If you've not…
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May 2020
In conversation with Peter Colman, we learn about why ENDIA takes blood samples from our young participants, what antibodies are…
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Apr 2020
The ENDIA Team would like to send sincere thanks to Bill Nash who has provided input and support to the…
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Feb 2020
Watch lead author, Dr Ki Wook Kim, outline findings from a recent paper published about viruses and participating ENDIA infants.…
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Jan 2020
We are delighted to announce a successful funding bid totalling $8.25 million (AUD) which is collaboratively provided by JDRF Australia…
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Nov 2019
The Study Team are extremely proud to announce that recruitment to ENDIA has now officially closed. Sincere thanks to all…
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Nov 2019
ENDIA is delighted to be able to introduce you to our beautiful new ENDIA logo baby, Kalara. Now that ENDIA…
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Sep 2019
Congratulations to ENDIA Study Investigator, Professor Len Harrison from the Walter & Eliza Hall Institute of Medical Research, on obtaining…
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Aug 2019
Congratulations to ENDIA's post doctoral research fellow, Dr Ki Wook Kim, for being awarded the Lindsey Baudinet Rising Star Award…
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Jul 2019
ENDIA is proud to announce that our funders, JDRF Australia, JDRF International and the Leona M & Harry B Helmsley Charitable Trust Fund,…
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Jul 2019
ENDIA mum, Nicole Windley, shares her diagnosis story National Diabetes Week is held in July every year to help raise…
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May 2019
In January 2019, ENDIA published a paper titled “Distinct gut virome profile of pregnant women with type 1 diabetes in…
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Mar 2019
Following on from Part 1 recently published on our website, we were very privileged to speak with Dani's mum, Kelsey,…
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Feb 2019
You may recall a recent Facebook post about a caring daughter, Dani, holding her Daddy’s hand during his blood test…
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Dec 2018
The ENDIA Study is a national prospective cohort study. It is a world-first investigation into the prenatal and early-life exposures,…
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Nov 2018
ENDIA investigators Professors Len Harrison (pictured), Jenny Couper and Maria Craig, and Doctors Megan Penno, John Wentworth, Simon Barry and…
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Nov 2018
Ever wondered what happens to all those samples that are collected from you and your kids at every visit? Well,…
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Nov 2018
The 14th November is Diabetes Day across the world. This year's theme was "Diabetes and the Family". What better way…
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Nov 2018
Our ENDIA participants are requested to have a regular blood test. One of the main reasons for this is to…
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May 2018
The ENDIA Study is proud to announce a significant milestone: 1000 babies enrolled! To celebrate and honour all our wonderful…
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May 2018
On the 20th May, we mark International Clinical Trials Day. The ENDIA Study was delighted to be invited to take…
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Mar 2018
Congratulations to Dr Rebecca Thomson on being one of six successful recipients of the inaugural Diabetes SA Research Grants. Rebecca…
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Feb 2018
ENDIA is celebrating! In February 2018, the study turns 5 years old! Happy birthday to us all! Our birthday present…
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Dec 2017
JDRF Australia has organised their annual 'One Walks' across the country between October and early December. On Thursday 30th November,…
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Nov 2017
On World Diabetes Day 2017, Australian Minister for Health the Hon Greg Hunt MP announced a five year $9.5 million…
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Oct 2017
The ENDIA app has had a bit of a facelift! It now includes access to most of our lifestyle questionnaires.…
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Sep 2017
Anthony Albanese, Labor MP, met with two ENDIA families (the Jeffresons and the Russells, pictured on the right) and JDRF advocate,…
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Aug 2017
ENDIA seeks to enrol 1400 babies who have a first degree relative with T1D. The aim is to follow them…
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Jul 2017
Member for Ballarat and Shadow Health Minister, Catherine King, met with participating ENDIA families and health professional advocates at Ballarat…
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Jul 2017
The wonderful Willoughby Family from Adelaide, SA, stepped up to promote type 1 diabetes and the ENDIA Study for Diabetes…
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Jun 2017
ENDIA Investigator, Professor Peter Colman, was recognised by a Member of the Order (AM) for his significant service to medicine in…
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Nov 2016
For World Diabetes Day (November 14th 2016), Diabetes SA held a seminar for people living with type 1 diabetes at…
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Meet some of the participants

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Mortensen Family: It's about more than type 1 diabetes

The ENDIA Team recently received a message from ENDIA mum, Cynthia. She has twin girls in the study, Alice and Mia. Cynthia wanted to thank ENDIA for the early detection of Alice’s coeliac disease well before she got sick. Given she is a mother of four young children, we were extremely lucky to find Cynthia available for a chat during a “quiet moment” to discuss her experiences with autoimmunity and participation in type 1 diabetes research with all of her children. “ENDIA is the best decision we’ve ever made for our kids.” Read more here…

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Introducing ENDIAN 1400!

Introducing our 1400th participant in the making! This little bubba-to-be also has a big brother, Luke, enrolled in ENDIA because their mum, Nadia, lives with type 1 diabetes. We were very lucky to catch up with Nadia recently to find out more about her experiences with type 1 diabetes and participation in the ENDIA Study.

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Zoe Phillips

My life with type one diabetes has definitely been a rollercoaster with no two days the same. I have always been super sensitive to changes in insulin. According to my endo, I was on baby doses until I got my first insulin pump; the pot of gold at the end of a rainbow for my control. Granted, I do still have days where unideal things happen, but the most important thing to remember is that we are all human, not textbooks. Which is why I have always tried to live by the mantra that although I have diabetes, it does not have me; meaning that I will never let it stop me from living life to the fullest or achieving the goals and dreams that I want, including becoming a mum.

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Zooming with the Papettas Family about ENDIA & CGM

Today we were delighted to zoom with Andrew, Emily and Adam Papettas. The Papettas Family have recently completed participation in our new CGM Study. Adam wore a CGM for a period of two weeks to help us monitor his blood sugar levels over this time, as well as other children participating in ENDIA.

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Heidi, Jo and Imogen

Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.

 

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Cadence

Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for five years now!

 

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Meet the Willoughby Family

Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…

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Stanton Family

Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.

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Damien McLeod on Being a Father of a Child with Type 1 Diabetes

ENDIA Dad, Damien McLeod, writes about being a father of a child living with type 1 diabetes.

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The Viskovitch Family

Meg Viskovitch recently shared with us why she and Greg said yes to ENDIA and what their experiences have been during their years of involvement in the study.

 

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The Parker Family

Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!

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What Is Involved?

ENDIA is a study following babies from the pregnancy into early childhood to find out what causes type 1 diabetes. There are no interventions; participation is low risk.

Regional Participation Program

The Regional Program was introduced to give people living in more rural and remote areas the opportunity to contribute to this important research from the comfort of their own home.