What is the Regional Participation Program?

The ENDIA Study has teams based in Adelaide, Brisbane, Geelong, Melbourne, Newcastle, Perth and Sydney.

Although we’d like to, we can’t be everywhere!

ENDIA’s Regional Participation Program was launched in 2016 to enable people living anywhere in Australia to join ENDIA.

Now eligible families, from ‘Andamooka’ to ‘Zeehan’, have the opportunity to contribute to this important research.

 

“Involving families from country areas across Australia is critically important to our findings, because we know there are differences between regional and urban environments…. Eligible families have the option to participate in the study from home, or with the help of their local health care professional.” Professor Jenny Couper, Lead Investigator of ENDIA.

Pictured below: ENDIA regional participant, Leo Long, from the ACT.

Who is eligible for the Regional Program?

Eligibility criteria for ENDIA’s Regional Program are the same as the main study. Unborn or newly born babies whose first degree relative (i.e. mother, father, brother or sister) has type 1 diabetes are sought to participate.

Generally the Regional Program is offered to those living too far away from the main ENDIA Study sites.

ENDIA seeks:

  • men with type 1 diabetes whose partner is pregnant
  • pregnant women with type 1 diabetes
  • children with type 1 diabetes whose mother is pregnant
  • babies under 6 months of age where mum, dad, brother or sister have type 1 diabetes.

Pictured left: ENDIA regional participant, Fletcher Hielscher, from Rockhampton, QLD

What does the Regional Program involve?

Involvement in the Regional Program is slightly less intensive than the main ENDIA Study.

Follow-up occurs roughly every six (6) months.

Questionnaires and other study materials are sent to participants by post.

Participants complete questionnaires and collect their own samples (or seek the help of their local health professional) and send them back to ENDIA in Adelaide by reply paid post or courier.

Regional Participants have ready access to the Regional Coordinator by phone and email to talk them through aspects of the study and answer any questions they have.

ENDIA’s Regional Program is coordinated by Sarah Beresford. Sarah has over 25 years experience in diabetes research and paediatric nursing. She offers a great deal of knowledge and skills to ENDIA’s regional participants.

If you are interested to know more about the Regional Program, call Sarah on (08) 8161 8655 or email endia@adelaide.edu.au