Sample and data access requests
The ENDIA Study has developed a repository of bio-specimens and data. This may be used for expansion of the study’s goals and to contribute to our understanding of disease processes in the future. The Study has a responsibility to ensure that the use of samples and data is ethical, purposeful and consistent with the goals of the ENDIA Study. Any individual, collaborative group or institution may submit a request to access anonymous samples or data in accordance with the ENDIA Governance Policy using the ENDIA Sample and Data Access Concept Form. In making samples available to external collaborators, the ENDIA Study Team is bound by its obligations to study participants, Human Research Ethics Committees, funding bodies, institutions, government agencies and key stakeholders. Individuals, collaborative groups and/or institutions accessing samples from the ENDIA Study will be bound by the ENDIA Study Publications Policy and will be required to submit publications generated using ENDIA Study materials to the ENDIA Publications Committee.
Contact the ENDIA Team
Requests to view ENDIA's Governance or Publication Policies should be emailed to firstname.lastname@example.org