The ENDIA Study
The Environmental Determinants of Islet Autoimmunity (ENDIA) Study is finding out what causes type 1 diabetes so we can find ways to prevent it.
In Australia, type 1 diabetes in children is twice as common as it was 20 years ago. This is because our environment has changed. If we can understand exactly what in the environment contributes to or protects against the disease, we can modify these factors to prevent type 1 diabetes in the future.
Pregnant women, the baby’s father or older sibling, with type 1 diabetes were eligible to participate in the ENDIA Study. Babies up to six months of age who had a parent or sibling with type 1 diabetes were also eligible.
Pregnant women with type 1 diabetes
Men with type 1 diabetes whose partner was pregnant
Children with type 1 diabetes whose mum was pregnant
Babies up to 6 months of age whose parent or sibling have type 1 diabetes
We have ENDIA families enrolled across Australia!
ENDIA staff are based in Adelaide, Brisbane, Geelong, Melbourne, Newcastle, Sydney, and Perth. Our Regional Participation Program means that people can participate from anywhere in Australia!
Contact an ENDIA team member near you:
Adelaide: (08) 8161 8118
Geelong: 0478 336 610
Newcastle: 0408 162 559
Sydney: 0421 364 336
All other areas: (08) 8161 8747
Brisbane: 0448 024 620
Melbourne: 0439 488 165
Monash Health: 0435 064 153
Perth: (08) 6456 4602
Meet some of the participantsView all
Meet the Willoughby Family
Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…
Zooming with the Papettas Family about ENDIA & CGM
Today we were delighted to zoom with Andrew, Emily and Adam Papettas. The Papettas Family have recently completed participation in our new CGM Study. Adam wore a CGM for a period of two weeks to help us monitor his blood sugar levels over this time, as well as other children participating in ENDIA.
Heidi, Jo and Imogen
Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.
Damien McLeod on Being a Father of a Child with Type 1 Diabetes
ENDIA Dad, Damien McLeod, writes about being a father of a child living with type 1 diabetes.
Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for five years now!
Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.
Mortensen Family: It's about more than type 1 diabetes
The ENDIA Team recently received a message from ENDIA mum, Cynthia. She has twin girls in the study, Alice and Mia. Cynthia wanted to thank ENDIA for the early detection of Alice’s coeliac disease well before she got sick. Given she is a mother of four young children, we were extremely lucky to find Cynthia available for a chat during a “quiet moment” to discuss her experiences with autoimmunity and participation in type 1 diabetes research with all of her children. “ENDIA is the best decision we’ve ever made for our kids.” Read more here…
Introducing ENDIAN 1400!
Introducing our 1400th participant in the making! This little bubba-to-be also has a big brother, Luke, enrolled in ENDIA because their mum, Nadia, lives with type 1 diabetes. We were very lucky to catch up with Nadia recently to find out more about her experiences with type 1 diabetes and participation in the ENDIA Study.
My life with type one diabetes has definitely been a rollercoaster with no two days the same. I have always been super sensitive to changes in insulin. According to my endo, I was on baby doses until I got my first insulin pump; the pot of gold at the end of a rainbow for my control. Granted, I do still have days where unideal things happen, but the most important thing to remember is that we are all human, not textbooks. Which is why I have always tried to live by the mantra that although I have diabetes, it does not have me; meaning that I will never let it stop me from living life to the fullest or achieving the goals and dreams that I want, including becoming a mum.
The Parker Family
Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!