The ENDIA Study

The Environmental Determinants of Islet Autoimmunity (ENDIA) Study is finding out what causes type 1 diabetes so we can find ways to prevent it.

In Australia, type 1 diabetes in children is twice as common as it was 20 years ago. This is because our environment has changed. If we can understand exactly what in the environment contributes to or protects against the disease, we can modify these factors to prevent type 1 diabetes in the future.

Learn about the ENDIA study
Current
participants
100% of target!

Target

1500
100%

Current

1500

Participants

Pregnant women, the baby’s father or old sibling, with type 1 diabetes were eligible to participate in the ENDIA Study. Babies up to six months of age who had a parent or sibling with type 1 diabetes were also eligible.

1

Pregnant women with type 1 diabetes

2

Men with type 1 diabetes whose partner was pregnant

3

Children with type 1 diabetes whose mum was pregnant

What Is Involved?

ENDIA is a study following babies from the pregnancy into early childhood to find out what causes type 1 diabetes. There are no interventions; participation is low risk.

Regional Participation Program

The Regional Program was introduced to give people living in more rural and remote areas the opportunity to contribute to this important research from the comfort of their own home.

We have ENDIA families enrolled across Australia!

ENDIA staff are based in Adelaide, Brisbane, Geelong, Melbourne, Newcastle, Sydney, and Perth. Our Regional Participation Program means that people can participate from anywhere in Australia!

Contact an ENDIA team member near you:

Adelaide: (08) 8161 7349

Geelong: 0478 336 610

Newcastle: 0408 162 559

Sydney: 0422 004 109

All other areas: (08) 8161 7452

Brisbane: (07) 3069 7510

Melbourne: 0439 488 165

Monash Health: 0435 064 153

Perth: (08) 6456 4602

Meet some of the participants

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Heidi, Jo and Imogen

Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.

 

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Introducing ENDIAN 1400!

Introducing our 1400th participant in the making! This little bubba-to-be also has a big brother, Luke, enrolled in ENDIA because their mum, Nadia, lives with type 1 diabetes. We were very lucky to catch up with Nadia recently to find out more about her experiences with type 1 diabetes and participation in the ENDIA Study.

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Meet the Willoughby Family

Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…

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The Parker Family

Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!

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The Viskovitch Family

Meg Viskovitch recently shared with us why she and Greg said yes to ENDIA and what their experiences have been during their years of involvement in the study.

 

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Stanton Family

Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.

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Zoe Phillips

My life with type one diabetes has definitely been a rollercoaster with no two days the same. I have always been super sensitive to changes in insulin. According to my endo, I was on baby doses until I got my first insulin pump; the pot of gold at the end of a rainbow for my control. Granted, I do still have days where unideal things happen, but the most important thing to remember is that we are all human, not textbooks. Which is why I have always tried to live by the mantra that although I have diabetes, it does not have me; meaning that I will never let it stop me from living life to the fullest or achieving the goals and dreams that I want, including becoming a mum.

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Cadence

Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for five years now!

 

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It's about more than type 1 diabetes

The ENDIA Team recently received a message from ENDIA mum, Cynthia. She has twin girls in the study, Alice and Mia. Cynthia wanted to thank ENDIA for the early detection of Alice’s coeliac disease well before she got sick. Given she is a mother of four young children, we were extremely lucky to find Cynthia available for a chat during a “quiet moment” to discuss her experiences with autoimmunity and participation in type 1 diabetes research with all of her children. “ENDIA is the best decision we’ve ever made for our kids.” Read more here…

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Latest News

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Nov 2019
The Study Team are extremely proud to announce that recruitment to ENDIA has now officially closed. Sincere thanks to all…
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Nov 2019
ENDIA is delighted to be able to introduce you to our beautiful new ENDIA logo baby, Kalara. Now that ENDIA…
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Sep 2019
Congratulations to ENDIA Study Investigator, Professor Len Harrison from the Walter & Eliza Hall Institute of Medical Research, on obtaining…
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Aug 2019
Congratulations to ENDIA's post doctoral research fellow, Dr Ki Wook Kim, for being awarded the Lindsey Baudinet Rising Star Award…
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Jul 2019
ENDIA is proud to announce that our funders, JDRF Australia, JDRF International and the Leona M & Harry B Helmsley Charitable Trust Fund,…
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Jul 2019
ENDIA mum, Nicole Windley, shares her diagnosis story National Diabetes Week is held in July every year to help raise…
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May 2019
In January 2019, ENDIA published a paper titled “Distinct gut virome profile of pregnant women with type 1 diabetes in…
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Mar 2019
Following on from Part 1 recently published on our website, we were very privileged to speak with Dani's mum, Kelsey,…
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Feb 2019
You may recall a recent Facebook post about a caring daughter, Dani, holding her Daddy’s hand during his blood test…
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Dec 2018
The ENDIA Study is a national prospective cohort study. It is a world-first investigation into the prenatal and early-life exposures,…
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Nov 2018
ENDIA investigators Professors Len Harrison (pictured), Jenny Couper and Maria Craig, and Doctors Megan Penno, John Wentworth, Simon Barry and…
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Nov 2018
Ever wondered what happens to all those samples that are collected from you and your kids at every visit? Well,…
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Nov 2018
The 14th November is Diabetes Day across the world. This year's theme was "Diabetes and the Family". What better way…
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Nov 2018
Our ENDIA participants are requested to have a regular blood test. One of the main reasons for this is to…
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May 2018
The ENDIA Study is proud to announce a significant milestone: 1000 babies enrolled! To celebrate and honour all our wonderful…
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May 2018
On the 20th May, we mark International Clinical Trials Day. The ENDIA Study was delighted to be invited to take…
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Mar 2018
Congratulations to Dr Rebecca Thomson on being one of six successful recipients of the inaugural Diabetes SA Research Grants. Rebecca…
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Feb 2018
ENDIA is celebrating! In February 2018, the study turns 5 years old! Happy birthday to us all! Our birthday present…
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Dec 2017
JDRF Australia has organised their annual 'One Walks' across the country between October and early December. On Thursday 30th November,…
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Nov 2017
On World Diabetes Day 2017, Australian Minister for Health the Hon Greg Hunt MP announced a five year $9.5 million…
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Oct 2017
The ENDIA app has had a bit of a facelift! It now includes access to most of our lifestyle questionnaires.…
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Sep 2017
Anthony Albanese, Labor MP, met with two ENDIA families (the Jeffresons and the Russells, pictured on the right) and JDRF advocate,…
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Aug 2017
ENDIA seeks to enrol 1400 babies who have a first degree relative with T1D. The aim is to follow them…
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Jul 2017
Member for Ballarat and Shadow Health Minister, Catherine King, met with participating ENDIA families and health professional advocates at Ballarat…
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Jul 2017
The wonderful Willoughby Family from Adelaide, SA, stepped up to promote type 1 diabetes and the ENDIA Study for Diabetes…
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Jun 2017
ENDIA Investigator, Professor Peter Colman, was recognised by a Member of the Order (AM) for his significant service to medicine in…
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Nov 2016
For World Diabetes Day (November 14th 2016), Diabetes SA held a seminar for people living with type 1 diabetes at…
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