The ENDIA Study

The Environmental Determinants of Islet Autoimmunity (ENDIA) Study is finding out what causes type 1 diabetes so we can find ways to prevent it.

In Australia, type 1 diabetes in children is twice as common as it was 20 years ago. This is because our environment has changed. If we can understand exactly what in the environment contributes to or protects against the disease, we can modify these factors to prevent type 1 diabetes in the future.

Learn about the
ENDIA study
Current
participants
96% of target!

Target

1500
96%

Current

1445

Who can participate?

If you, your partner or child have type 1 diabetes, and are about to welcome a new baby to the family, then your family may be eligible to participate in the ENDIA Study.

If you, or one of your family members, meet one of the eligibility criteria below, consider participating in ENDIA; we’d love to hear from you. Click the “Participate in ENDIA” button to the right to contact us and find out more.

1

A pregnant woman with type 1 diabetes

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A man with type 1 diabetes whose partner is pregnant

3

A child with type 1 diabetes whose mum is pregnant

What Is Involved?

ENDIA is a study following babies from the pregnancy into early childhood to find out what causes type 1 diabetes. There are no interventions; participation is low risk.

Regional Participation Program

The Regional Program was introduced to give people living in more rural and remote areas the opportunity to contribute to this important research from the comfort of their own home.

We have ENDIA families enrolled across Australia!

ENDIA staff are based in Adelaide, Brisbane, Geelong, Melbourne, Newcastle, Sydney, and Perth. Our Regional Participation Program means that people can participate from anywhere in Australia!

Contact an ENDIA team member near you:

Adelaide: (08) 8161 7349

Geelong: 0478 336 610

Newcastle: 0408 162 559

Sydney: 0422 004 109

All other areas: (08) 8161 7452

Brisbane: (07) 3069 7510

Melbourne: 0439 488 165

Monash Health: 0435 064 153

Perth: (08) 6456 4602

Meet some of the participants

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Zoe Phillips

My life with type one diabetes has definitely been a rollercoaster with no two days the same. I have always been super sensitive to changes in insulin. According to my endo, I was on baby doses until I got my first insulin pump; the pot of gold at the end of a rainbow for my control. Granted, I do still have days where unideal things happen, but the most important thing to remember is that we are all human, not textbooks. Which is why I have always tried to live by the mantra that although I have diabetes, it does not have me; meaning that I will never let it stop me from living life to the fullest or achieving the goals and dreams that I want, including becoming a mum.

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Meet the Willoughby Family

Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…

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Stanton Family

Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.

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Introducing ENDIAN 1400!

Introducing our 1400th participant in the making! This little bubba-to-be also has a big brother, Luke, enrolled in ENDIA because their mum, Nadia, lives with type 1 diabetes. We were very lucky to catch up with Nadia recently to find out more about her experiences with type 1 diabetes and participation in the ENDIA Study.

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Cadence

Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for five years now!

 

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Heidi, Jo and Imogen

Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.

 

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The Parker Family

Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!

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The Viskovitch Family

Meg Viskovitch recently shared with us why she and Greg said yes to ENDIA and what their experiences have been during their years of involvement in the study.

 

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It's about more than type 1 diabetes

The ENDIA Team recently received a message from ENDIA mum, Cynthia. She has twin girls in the study, Alice and Mia. Cynthia wanted to thank ENDIA for the early detection of Alice’s coeliac disease well before she got sick. Given she is a mother of four young children, we were extremely lucky to find Cynthia available for a chat during a “quiet moment” to discuss her experiences with autoimmunity and participation in type 1 diabetes research with all of her children. “ENDIA is the best decision we’ve ever made for our kids.” Read more here…

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Latest News

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Sep 2019
Congratulations to ENDIA Study Investigator, Professor Len Harrison from the Walter & Eliza Hall Institute of Medical Research, on obtaining…
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Aug 2019
Congratulations to ENDIA's post doctoral research fellow, Dr Ki Wook Kim, for being awarded the Lindsey Baudinet Rising Star Award…
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Jul 2019
ENDIA is proud to announce that our funders, JDRF Australia, JDRF International and the Leona M & Harry B Helmsley Charitable Trust Fund,…
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