The ENDIA Study
The Environmental Determinants of Islet Autoimmunity (ENDIA) Study is finding out what causes type 1 diabetes so we can find ways to prevent it.
In Australia, type 1 diabetes in children is twice as common as it was 20 years ago. This is because our environment has changed.
If we can understand exactly what in the environment contributes to or protects against the disease, we can modify these factors to prevent type 1 diabetes in the future.
Who can participate?
If you, your partner or child have type 1 diabetes, and are about to welcome a new baby to the family, then your family may be eligible to participate in the ENDIA Study.
If you, or one of your family members, meet one of the eligibility criteria below, consider participating in ENDIA; we’d love to hear from you. Click the “Participate in ENDIA” button to the right to contact us and find out more.
A pregnant woman with type 1 diabetes
A man with type 1 diabetes whose partner is pregnant
A child with type 1 diabetes whose mum is pregnant
A baby aged less than 6 months whose parent or sibling has type 1 diabetes
We have ENDIA families enrolled across Australia!
ENDIA staff are based in Adelaide, Brisbane, Geelong, Melbourne, Newcastle, Sydney, and Perth. Our Regional Participation Program means that people can participate from anywhere in Australia!
Contact an ENDIA team near you:
Adelaide: (08) 8161 7349
Geelong: 0478 336 610
Newcastle: 0408 162 559
Sydney: (02) 9382 9243
Brisbane: (07) 3069 7510
Melbourne: (03) 9342 8641
Perth: (08) 9340 7974
All other areas: (08) 8161 8655
Meet some of the participantsView all
The Parker Family
Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!
Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.
Heidi, Jo and Imogen
Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.
Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for four years now!
Meet the Willoughby Family
Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…