The ENDIA Study

The Environmental Determinants of Islet Autoimmunity (ENDIA) Study is finding out what causes type 1 diabetes so we can find ways to prevent it.

In Australia, type 1 diabetes in children is twice as common as it was 20 years ago. This is because our environment has changed.

If we can understand exactly what in the environment contributes to or protects against the disease, we can modify these factors to prevent type 1 diabetes in the future.

Learn about the
ENDIA study
Current
participants
60% of target!

Target

1400
60%

Current

841

Who can participate?

If you, your partner or child have type 1 diabetes, and are about to welcome a new baby to the family, then your family may be eligible to participate in the ENDIA Study.

If you, or one of your family members, meet one of the eligibility criteria below, consider participating in ENDIA; we’d love to hear from you. Click the “Participate in ENDIA” button to the right to contact us and find out more.

1

A pregnant woman with type 1 diabetes

2

A man with type 1 diabetes whose partner is pregnant

3

A child with type 1 diabetes whose mum is pregnant

4

A baby aged less than 6 months whose parent or sibling has type 1 diabetes

What Is Involved?

ENDIA is a study following babies from the pregnancy into early childhood to find out what causes type 1 diabetes. There are no interventions; participation is low risk.

Regional Participation Program

The Regional Program was introduced to give people living in more rural and remote areas the opportunity to contribute to this important research from the comfort of their own home.

We have ENDIA families enrolled across Australia!

ENDIA staff are based in Adelaide, Brisbane, Geelong, Melbourne, Newcastle, Sydney, and Perth. Our Regional Participation Program means that people can participate from anywhere in Australia!

 

Contact an ENDIA team near you:

Adelaide: (08) 8161 7349

Geelong: 0478 336 610

Newcastle: 0408 162 559

Sydney: (02) 9382 9243

Brisbane: (07) 3069 7510

Melbourne: (03) 9342 8641

Perth: (08) 9340 7974

All other areas: (08) 8161 8655

Meet some of the participants

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Stanton Family

Emily, Scott and Jemima Clarke are taking part in the ENDIA study from Perth, WA. Emily has had type 1 diabetes for 22 years.

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The Parker Family

Evan Parker is one of many members of his extended family that live with type 1 diabetes. He’s had type 1 diabetes for 30 years. His wife Andrea, and two sons, have been participating in the ENDIA Study from Adelaide since before both boys were born. The eldest, Alexander, is over 4 years old now!

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Cadence

Cadence was diagnosed with type 1 diabetes when she was 18 years old; over 17 years ago. She came across the ENDIA Study in her role as a Senior Research Grants Officer at the University of Adelaide. Cadence was determined to continue contributing to research throughout her pregnancy and her child’s early life. Her eldest son, Edwin, has been involved in the study for four years now!

 

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Heidi, Jo and Imogen

Heidi was diagnosed with type 1 diabetes when she was 9 years old. She is now 36 years old, so that’s 25 years of living with type 1. But rather than dwell on this, Heidi works as a social worker with the same dedicated treating team that cared for her as a child. So Heidi lives and works with diabetes 24/7 and loves her job.

 

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Meet the Willoughby Family

Adam and Bec Willoughby live in Adelaide, SA. They have four gorgeous children: eldest son, Charlie, their twin boys, Hugo and Jack, and 12 month old baby girl, and ENDIA participant, Poppy. Charlie was diagnosed with type 1 diabetes aged 3 and a half years. Bec recently wrote a piece for Mamamia about Charlie’s diagnosis and their involvement in the ENDIA Study. We’re sharing excerpts of Bec’s story here…

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Latest News

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Sep 2017
Anthony Albanese, Labor MP, met with two ENDIA families (the Jeffresons and the Russells, pictured on the right) and JDRF advocate,…
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Aug 2017
ENDIA seeks to enrol 1400 babies who have a first degree relative with T1D. The aim is to follow them…
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Jul 2017
Member for Ballarat and Shadow Health Minister, Catherine King, met with participating families and health professional advocates at Ballarat Base…
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