The ENDIA – Environmental Determinants of Islet Autoimmunity – Study is the only study in the world to study the causes of type 1 diabetes from the pregnancy.

ENDIA is a longitudinal observational study; there are no interventions and participation is low risk. Participant involvement in ENDIA does not alter usual care.

We aim to follow 1400 babies (Australia-wide) who have a first degree relative with type 1 diabetes to determine how gene-environment interactions affect the risk of developing persistent islet autoimmunity and type 1 diabetes.

If you see a patient that meets the following criteria, please consider referring them to ENDIA:

  • Pregnant women with type 1 diabetes
  • Men with type 1 diabetes whose partner is pregnant
  • Children with type 1 diabetes whose mother is pregnant
  • Babies under 6 months of age with a first degree relative (mum, dad, brother or sister) who has type 1 diabetes.

The ENDIA Study wishes to encourage fathers living with type 1 diabetes to consider participating with their family.

If you would like more information about the ENDIA study please use the Contact form or email directly.

We’d be pleased to mail study brochures and posters for display in your area of practice.

If helpful, we can arrange for a member of our research team to visit your practice or call and discuss ENDIA with you and your colleagues.

Alternatively, call our Project Management Team directly on (08) 8161 8747 at a time convenient to you.

Pictured from top to bottom: A. Prof John Wentworth chats with ENDIA participant, Frankie, and the Lee family; ENDIA nurse, Candice, with Elizabeth, Stuart and Francesca in Melbourne; ENDIA nurse, Julianne, and participant, Harrison, in Brisbane; Professor Jenny Couper (Lead ENDIA Investigator and Endocrinologist) with mums, Holly and Cadence, and baby Edwin, in Adelaide, SA.

To reach out to an ENDIA team near you call:

Adelaide: (08) 8161 7349

Geelong: 0478 336 610

Newcastle: 0408 162 559

Sydney: 0422 004 109

All other areas: (08) 8161 7452

Brisbane: (07) 3069 7510

Melbourne: 0439 488 165

Monash Health: 0435 064 153

Perth: (08) 6456 4602